Managing health data is critical during the research process. Research data management includes the organization of data throughout the research lifecycle, from data collection to publication to storage and archival. Health data that includes identifiers, or PHI (personal health identifiers) must be collected, stored, and processed in a way that complies with the Health Insurance Portability and Accountability Act of 1996 (HIPAA).
HIPAA in Research
FSU's Office for Human Subjects Protection provides a detailed overview of using HIPAA in research.
Protecting High-Risk Data at FSU
This document outlines strategies to protect high-risk data (Potentially Identifiable Information [PII], Protected Health Information [PHI], etc.) when working with it for research purposes. It also outlines detailed strategies for working with high-risk data in REDCap.
Get Help Managing Your Data
FSU Libraries helps researchers develop data management strategies and plans with the DMPTool. Learn more here.
NIH Data Sharing Mandate: Updated 2023
The NIH has issued a Data Management and Sharing (DMS) policy, effective January 25, 2023, to promote the sharing of scientific data. FSU Library staff can help researchers with data management planning.